On December 4th The Migraine Belief held a breakfast occasion within the UK Parliament to launch our new Toolkit for MPs’ and convey affected person representatives along with MPs to spotlight their experiences of how migraine hurts.
The toolkit supplies MPs with info on what they should learn about migraine; find out how to assist the 1 in 7 of their constituents who might be residing with migraine and could also be struggling to safe ample care; find out how to promote migraine-friendly work; and methods they’ll increase consciousness and present assist for all these residing with migraine.
The occasion was hosted by Caroline Nokes MP, the Deputy Speaker of the Home of Commons and a former minister who has spoken about her personal struggles with the situation, and by Dr Simon Opher MP, a GP who was first elected to Parliament within the July 2024 basic election this 12 months.
Commenting on the office influence of migraine particularly, Caroline Nokes mentioned “I do know the influence migraines have on my skill to work, and understand how essential it’s that employers make changes to permit us all to maintain working”.
“As a GP I’ve seen many circumstances of migraine and it has additionally affected family members, so I understand how debilitating it may be for folks of their every day lives. Folks with migraine want assist, within the well being system and likewise of their workplaces”, Dr Opher mentioned.
A number of affected person representatives from The Migraine Belief’s Inclusion Panel attended the occasion to talk to MPs concerning the actuality of residing with the situation, and the way politicians can with to enhance care and assist.
We had been joined by MPs from quite a lot of events, together with many who had been first elected in July’s basic election and won’t have heard from supporters of The Migraine Belief earlier than. Many talked about that they had heard of the occasion from a number of constituents, so thank to you to everybody who contacted their MP and helped make the occasion a hit. We had been additionally contacted by many others who had been unable to attend the occasion however need to meet us at an additional date or discover out extra.
We additionally had conversations with a number of MPs and members of their staffs who had been themselves affected by migraine, exhibiting the breadth of the influence it has.
Work like that is essential to boost consciousness concerning the want for higher migraine care and affected person voices are essential to convey this message to life, so we thank all those that took half.
If you want to know extra about how one can assist our work, contact us at [email protected].
